Tomorrow is a very special day in the Provance household. It is Mary's birthday!
As many of you can imagine, it has been difficult to come across the right words to say and write as we make our way through this journey as a family. Each day there are different emotions spilling through; however, I can say (as the outlaw) that I have been so blessed by watching everyone unite.
If we wrote the full exposed truth in this blog you would be shocked because the truth is hard and scary and sad and frustrating. Somehow, through all of this, the Provance family has shown grace and love and committment to one another. I know where that comes from and where it starts. It comes from our faith in God. It starts at the top, in a family, with a mom and dad who teach their children what that means and how we display that faith to others. I was thinking a lot about that this morning. As Mary's birthday approaches, I was thinking about some of my favorite Mary things. One of the top on the list is the way she and Greg taught her children to love. Isn't that one of God's commandments?
John 13:34 says "A new commandment I give to you, that you love one another; just as I have loved you, you are also to love one another.
I don't know how she did it and yes I do plan on asking her, but she and Greg molded children that genuinely love and support each other and their families above all else. There are certainly moments of frustration that take place in the Provance household. We are not unique in that respect. However, we work hard to communicate, apologize, and forgive. Our goal, at the end of the day, is love.
So, today, as we turn a new page to Mary's birthday, I want to call you all to love. You can start by sending a note to Mary and letting her know you are thinking of her on her special day! She is currently battling a fever and would really love if you all could pray that all away!
XO Bre
Thursday, December 19, 2013
Sunday, December 8, 2013
Update on Mom (and Dad!)
Merry Christmas!!
It's been two weeks since our last update and it's safe to say that Mom has had a pretty good 2 weeks. As you know we had our Thanksgiving a little early but we were even able to gather at Mom and Dad's house on the "real" Thanksgiving Day, which was a blessing. It was a scene like we all have witnessed so many times over the years...kids running everywhere, aunts and uncles and cousins all catching up, good food and deserts everywhere - Mom had a very good day and was happy everyone was able to join us. "Thankful" was the perfect word to describe that day...many of us have said or felt, after Mom came home from the hospital, that all we wanted was to have some high quality days for Mom at home - and we've been so blessed to have those since our last update.
Things were pretty calm until the Friday after Thanksgiving!! About 7:00 am I received a call from Julie, who obviously has been staying with Mom and Dad, that Dad was hurting pretty bad and that I needed to get into town. Well, after some very touch and go moments, they rushed Dad to the hospital and we were told that he had a heart attack! Thankfully they performed a procedure on him very quickly and an hour later he was recovering in ICU. I wish I could explain how many emotions were involved throughout the entire situation, but I'm sure you can imagine how difficult a time it truly was...but he's doing well at home now and the doctor says that he should make a full recovery! Over the last week you could tell that Mom was feeling pretty good because she's been scolding him for eating things that he's not supposed to be eating!!! It's been pretty funny!
The last week has involved Mom and Dad resting at home and all of us (kids, grandkids, siblings, and close friends) spending time with them. I'll end with this...I talked to Mom's doctor earlier this week mainly just to update her on how Mom is doing as well as to tell her about Dad's situation. As I was describing how Mom is feeling and asking her questions she said "There is really only one word I can use to describe her Adam...MIRACULOUS!" She has beaten every odd, every statistic, and there are really no answers as to why she was able to get stronger since coming home from the hospital! When a doctor says the word "MIRACULOUS" then it gets your attention..and we agree with her!! Thank you for your continued prayers and support, we love you all and ask that you continue to pray for Mom as her birthday (December 20th) and Christmas approaches. We know we are getting a miracle right now, pray that it continues for her...it's just that simple! Merry Christmas to you all from the entire Provance Family!!
-Adam
It's been two weeks since our last update and it's safe to say that Mom has had a pretty good 2 weeks. As you know we had our Thanksgiving a little early but we were even able to gather at Mom and Dad's house on the "real" Thanksgiving Day, which was a blessing. It was a scene like we all have witnessed so many times over the years...kids running everywhere, aunts and uncles and cousins all catching up, good food and deserts everywhere - Mom had a very good day and was happy everyone was able to join us. "Thankful" was the perfect word to describe that day...many of us have said or felt, after Mom came home from the hospital, that all we wanted was to have some high quality days for Mom at home - and we've been so blessed to have those since our last update.
Things were pretty calm until the Friday after Thanksgiving!! About 7:00 am I received a call from Julie, who obviously has been staying with Mom and Dad, that Dad was hurting pretty bad and that I needed to get into town. Well, after some very touch and go moments, they rushed Dad to the hospital and we were told that he had a heart attack! Thankfully they performed a procedure on him very quickly and an hour later he was recovering in ICU. I wish I could explain how many emotions were involved throughout the entire situation, but I'm sure you can imagine how difficult a time it truly was...but he's doing well at home now and the doctor says that he should make a full recovery! Over the last week you could tell that Mom was feeling pretty good because she's been scolding him for eating things that he's not supposed to be eating!!! It's been pretty funny!
The last week has involved Mom and Dad resting at home and all of us (kids, grandkids, siblings, and close friends) spending time with them. I'll end with this...I talked to Mom's doctor earlier this week mainly just to update her on how Mom is doing as well as to tell her about Dad's situation. As I was describing how Mom is feeling and asking her questions she said "There is really only one word I can use to describe her Adam...MIRACULOUS!" She has beaten every odd, every statistic, and there are really no answers as to why she was able to get stronger since coming home from the hospital! When a doctor says the word "MIRACULOUS" then it gets your attention..and we agree with her!! Thank you for your continued prayers and support, we love you all and ask that you continue to pray for Mom as her birthday (December 20th) and Christmas approaches. We know we are getting a miracle right now, pray that it continues for her...it's just that simple! Merry Christmas to you all from the entire Provance Family!!
-Adam
Tuesday, November 19, 2013
Update
Good morning and thanks for checking in. Mom is doing okay these days. She gets around the house to do the things she needs to do and has been busy with lots of visitors. We feel very blessed to have so many people who love and care about us. She still retreats to her bed throughout the day so she can stretch out. She's not sleeping a lot during the day, just resting. She prefers to keep herself awake so she can sleep well at night.
We kept her busy this weekend. On Saturday Mom went to Adam's alumni football game. It was raining so she sat in the car with Dad and I, but she was still able to see the first half. It meant a lot for Adam to have her there. She yelled and cheered as Adam caught and ran the ball down the field. We left the game at halftime but Adam's team went on to win, and he even scored a touchdown in the fourth quarter.
On Sunday we prepared a Thanksgiving meal to have together.
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Mom didn't eat much but we all enjoyed our time together. After we ate, some of Mom's brothers and sisters in law also came to visit. These days are very emotional for everyone, but we are going to be thankful for each moment we have together.
Please continue to pray for peace and strength for Mom and all of us.
Below is a beautiful song Bre shared with us this morning...."How Great Thou Art."
We kept her busy this weekend. On Saturday Mom went to Adam's alumni football game. It was raining so she sat in the car with Dad and I, but she was still able to see the first half. It meant a lot for Adam to have her there. She yelled and cheered as Adam caught and ran the ball down the field. We left the game at halftime but Adam's team went on to win, and he even scored a touchdown in the fourth quarter.
On Sunday we prepared a Thanksgiving meal to have together.
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Mom didn't eat much but we all enjoyed our time together. After we ate, some of Mom's brothers and sisters in law also came to visit. These days are very emotional for everyone, but we are going to be thankful for each moment we have together.
Please continue to pray for peace and strength for Mom and all of us.
Below is a beautiful song Bre shared with us this morning...."How Great Thou Art."
Thursday, November 14, 2013
Peace and Purpose
November 14th, 2013
Last night our family met at Mom and Dad's house to go over some very difficult news that was told to Mom at her doctor's appointment at Northwestern Hospital yesterday afternoon. We realize that the blog may not be the best way to share some of this due to the difficult nature of what has been told to Mom, but we feel it's the right thing to do being that all of you have been praying for Mom everyday based on information you have read here on her site.
Dr. Jessica explained to Mom, as well as Dad, Julie and Amy who were in attendance with her, that leukemic blasts are showing up in her bloodwork now...and what that means is confirmation that leukemia is still present in her body. After the last two weeks in which Mom was having some very good days we were all still hopeful that the chemotherapy she had over 2 months ago would have eliminated her leukemia another time. It did eliminate some of the leukemia at the time but not all, and she is again faced with the reality that her leukemia will just not go/stay away. Her body, soul and mind have been through SO much, more than any of us can understand...so as you can imagine it's been a very difficult time for her and for our family.
We ask that you keep praying for peace...peace for Mom as she goes through the most difficult days of her life. All of us gathered with her last night...we held her and hugged/kissed her and told her that we are going to be there with her through any of the fears or emotions that she has...and even though none of us have ever gone through anything like this we will stand together, united in our faith in the Lord and our love for one another...she has taught us that and she has been the best example by living her own life in that fashion.
The thing we ask most is to be praying for her and for our family. We also ask that if you would like to visit please just reach out to one of us before you come to the house. There are times where she feels like company and as you can imagine, there are also times that she's just wanting to get some rest or enjoy a quiet home. We can assure you that she is getting the best care, support and love that can be provided...and we will all continue to give her that as we go through this situation together. Thank you for your continued prayers, support and love...your letters/cards have meant so much to us. Love to you all and we will try and keep you informed, thank you,
Adam and the entire Provance Family
Last night our family met at Mom and Dad's house to go over some very difficult news that was told to Mom at her doctor's appointment at Northwestern Hospital yesterday afternoon. We realize that the blog may not be the best way to share some of this due to the difficult nature of what has been told to Mom, but we feel it's the right thing to do being that all of you have been praying for Mom everyday based on information you have read here on her site.
Dr. Jessica explained to Mom, as well as Dad, Julie and Amy who were in attendance with her, that leukemic blasts are showing up in her bloodwork now...and what that means is confirmation that leukemia is still present in her body. After the last two weeks in which Mom was having some very good days we were all still hopeful that the chemotherapy she had over 2 months ago would have eliminated her leukemia another time. It did eliminate some of the leukemia at the time but not all, and she is again faced with the reality that her leukemia will just not go/stay away. Her body, soul and mind have been through SO much, more than any of us can understand...so as you can imagine it's been a very difficult time for her and for our family.
We ask that you keep praying for peace...peace for Mom as she goes through the most difficult days of her life. All of us gathered with her last night...we held her and hugged/kissed her and told her that we are going to be there with her through any of the fears or emotions that she has...and even though none of us have ever gone through anything like this we will stand together, united in our faith in the Lord and our love for one another...she has taught us that and she has been the best example by living her own life in that fashion.
The thing we ask most is to be praying for her and for our family. We also ask that if you would like to visit please just reach out to one of us before you come to the house. There are times where she feels like company and as you can imagine, there are also times that she's just wanting to get some rest or enjoy a quiet home. We can assure you that she is getting the best care, support and love that can be provided...and we will all continue to give her that as we go through this situation together. Thank you for your continued prayers, support and love...your letters/cards have meant so much to us. Love to you all and we will try and keep you informed, thank you,
Adam and the entire Provance Family
Sunday, November 10, 2013
Great Perspective on Life
Please take a few minutes to watch this video that my Dad found and shared with all of us. This woman has an amazing perspective on life and what she's on earth for.
Mother Dying of Cancer Gives a Godly, Life-Changing Final Speech from untilweflyaway on GodTube.
Mother Dying of Cancer Gives a Godly, Life-Changing Final Speech from untilweflyaway on GodTube.
Saturday, November 9, 2013
A good calm week
Mom has been doing pretty well this week. She has gained a little strength and has been able to enjoy her visitors a little more. She still needs a lot of rest and help around the house, but has shown us she's giving it everything she has to grow stronger.
Last night Mom's sister, Sue, hosted our annual Kaufmann girls' shopping trip (which turned into a sleepover and no shopping). We had it in Seneca so Mom could be a part of this fun night she loves every year. Dad and Julie took Mom up to get blood yesterday, but then Mom and Julie were able to make it back to Sue's for the evening fun. Everyone loved having Mom there and Mom stretched herself to stay as long as she could. I think it meant a lot to Mom to be surrounded with all the love.
We don't know much else at this time, but we celebrate everyday that Mom feels okay. She will have an appointment this week and we'll do our best to keep you all updated as you pray for Mom. Thanks for all the love and support every step along the way.
Monday, November 4, 2013
Blessing
From last Saturday to today, we got to see a nice change..a positive change in mom's energy, eating and mood! (Thanks to her being off the anti-fungal antibiotic & her determintation, drive & fight) It's been quite a blessing! Last Sunday-Thurs have been some of her best days in a very long time! We had a lot of visitors last week and then with Halloween - lots of cute little ones bringing the exitement and joy to the house!
Sometimes, I know we tire her out with all the company...but we can't stay away! Grammy's house is a favorite place to be for all..and you just can't stay away! We've really enjoyed the blessing of her having a good week!
We saw Dr. Jessica last Wednesday, and the appointment went well. The visit 10 days prior to that one proved a drastic change for the better and Dr. Jessica was very pleased! There still hasn't been a blast in the blood with the leukemia, but numbers are still slow to move & have fluctuated too much, so unfortunately, there is nothing that can be done on someone with such a compromised immune system and with a journey like my mom has been on - and actually, more treatment can actually make things worse and not better. The love and support we receive from Dr. Jessica and her team is just amazing! They truly love mom and our family, so we know that as hard as this is for us, it is just as hard for them..
You see, Dr. Jessica has made if very clear every time we see her how amazed she is by mom! The fight she has put up, well..she's just never met anyone like her before. I know I am blessed by it..and my grandma had it too! We are fighters. Thankfully, I've got that trait in me too! We fight and we pray and we trust God with our everything...because that's what we were taught and it's what works. A legacy of giving everything you have..a legacy of love..of forgiveness..and of faith. I may be biased, but I think we have something very, very special and I sure wouldn't trade it for the world!
We are unsure of what the future will bring but we are thankful for each day Mom is home and spending time with us. Praying for the every day..for a miracle..for comfort..for peace. Join us in praying and as always thank you for your love and support!
(If you look closely you can see mom in the window)
Sometimes, I know we tire her out with all the company...but we can't stay away! Grammy's house is a favorite place to be for all..and you just can't stay away! We've really enjoyed the blessing of her having a good week!
We saw Dr. Jessica last Wednesday, and the appointment went well. The visit 10 days prior to that one proved a drastic change for the better and Dr. Jessica was very pleased! There still hasn't been a blast in the blood with the leukemia, but numbers are still slow to move & have fluctuated too much, so unfortunately, there is nothing that can be done on someone with such a compromised immune system and with a journey like my mom has been on - and actually, more treatment can actually make things worse and not better. The love and support we receive from Dr. Jessica and her team is just amazing! They truly love mom and our family, so we know that as hard as this is for us, it is just as hard for them..
You see, Dr. Jessica has made if very clear every time we see her how amazed she is by mom! The fight she has put up, well..she's just never met anyone like her before. I know I am blessed by it..and my grandma had it too! We are fighters. Thankfully, I've got that trait in me too! We fight and we pray and we trust God with our everything...because that's what we were taught and it's what works. A legacy of giving everything you have..a legacy of love..of forgiveness..and of faith. I may be biased, but I think we have something very, very special and I sure wouldn't trade it for the world!
We are unsure of what the future will bring but we are thankful for each day Mom is home and spending time with us. Praying for the every day..for a miracle..for comfort..for peace. Join us in praying and as always thank you for your love and support!
Saturday, October 26, 2013
Quiet Saturday
Mom has been doing ok this week. She's been able to stay home and relax in the comfort of her own bed. She is slow to get around and would prefer to stay in bed all day, but knows the only way to get any better is to get up and move around once in a while. She's tried harder to do that this week even though it's usually a chore. She's switched over to all oral medicine now and her stomach has felt a little bit better. She still doesn't have a desire to eat much but has to take a few bites when she takes her medicine.
I think her attitude has improved some from last week. She's choosing every day to put in all the effort she can to get better and to interact with us. It's good to see her showing us she wants to feel better.
There is no bone marrow biopsy scheduled at this time. Dr Jessica still believes there is cancer present but it has not shown up in mom's blood work yet. Jessica thinks it's there because of how slow mom's counts are coming back up since chemo. There's nothing they can do for her at this time other than treat the symptoms she has.
We continue to support her every steps of the way and pray for a miracle to happen. Thanks for all the prayers, notes, meals, and visits.
Monday, October 21, 2013
Time At Home
Hello Everyone!
Once again, we are sorry for the delay in updating the blog...as you can imagine, it's been a very busy time for the entire family.
As you know, Mom arrived home last Wednesday night and overall things have been quiet for her at home. She's continued to have visitors at the house but overall she's still very weak and wants to be either sleeping on the couch or in her bed. She needs 24 hour care and Julie has been taking on that role since Mom has been home again from the hospital. I want to call her out because she's been doing an amazing job not only taking care of Mom, but also making sure that things are running smoothly for both Dad and around the house - Thank You Julie!
As most of you probably know, I am a "Glass Half-Full" kind of person. My outlook on Mom's situation has always been one that is centered around trust in the Lord to be in control of her situation entirely, and also one that involves a strong amount of Hope that Mom will eventually get better and be healed of this disease. At the same time we also have to be very real with what she has been through and the aggressive nature of the AML that she has had for periods of time over the past 4+ years. Her body, both physically and emotionally, has been through more than any one person should have to take...and although it's not fair in any way, that toll is starting to limit the options that we are going to be able to pursue for her. We are not exactly sure what that means for her at this moment in time, but our main goal right now is to try and make her final days with us (whether that be 1 or 1000) the best they can possibly be for her.
So what does that mean for you? I'm going to be direct...I am encouraging you to go and see her, if you are healthy, or to send something to her that can be read to her by one of us (her children). Mom is weak and may or may not be able to express her appreciation for those things, but if you know her well than you will know that your visit or card/letter will mean a great deal to her. All you need to do is to reach out to one of us; Amy, Julie, Suzanne, David or myself. The only requirement for a visit is that you are healthy, and that can be tough at this time of the year, but please be careful and error on the side of caution.
Lastly, today Mom went up to meet with Dr. Jessica as well as some of the other members of the team at Northwestern. We are still exploring all options for treatment for her and it appears that later this week they will probably do another bone marrow biopsy to see if the leukemia is officially out of her system or not. We'll keep you updated on those results and anything new that happens this week. This morning I went over to see her and she was resting very comfortably in her bed after a pretty good night of sleep. Her and Dad purchased a new bed about 2 months ago and it's safe to say that she is very happy and content to be in the comfort of her own bed/home. Thank you again for the prayers, thoughts, support and mostly the love that all of you have continued to show to my Mom and all members of our immediate family. God Bless and Love to you all!
Adam
Once again, we are sorry for the delay in updating the blog...as you can imagine, it's been a very busy time for the entire family.
As you know, Mom arrived home last Wednesday night and overall things have been quiet for her at home. She's continued to have visitors at the house but overall she's still very weak and wants to be either sleeping on the couch or in her bed. She needs 24 hour care and Julie has been taking on that role since Mom has been home again from the hospital. I want to call her out because she's been doing an amazing job not only taking care of Mom, but also making sure that things are running smoothly for both Dad and around the house - Thank You Julie!
As most of you probably know, I am a "Glass Half-Full" kind of person. My outlook on Mom's situation has always been one that is centered around trust in the Lord to be in control of her situation entirely, and also one that involves a strong amount of Hope that Mom will eventually get better and be healed of this disease. At the same time we also have to be very real with what she has been through and the aggressive nature of the AML that she has had for periods of time over the past 4+ years. Her body, both physically and emotionally, has been through more than any one person should have to take...and although it's not fair in any way, that toll is starting to limit the options that we are going to be able to pursue for her. We are not exactly sure what that means for her at this moment in time, but our main goal right now is to try and make her final days with us (whether that be 1 or 1000) the best they can possibly be for her.
So what does that mean for you? I'm going to be direct...I am encouraging you to go and see her, if you are healthy, or to send something to her that can be read to her by one of us (her children). Mom is weak and may or may not be able to express her appreciation for those things, but if you know her well than you will know that your visit or card/letter will mean a great deal to her. All you need to do is to reach out to one of us; Amy, Julie, Suzanne, David or myself. The only requirement for a visit is that you are healthy, and that can be tough at this time of the year, but please be careful and error on the side of caution.
Lastly, today Mom went up to meet with Dr. Jessica as well as some of the other members of the team at Northwestern. We are still exploring all options for treatment for her and it appears that later this week they will probably do another bone marrow biopsy to see if the leukemia is officially out of her system or not. We'll keep you updated on those results and anything new that happens this week. This morning I went over to see her and she was resting very comfortably in her bed after a pretty good night of sleep. Her and Dad purchased a new bed about 2 months ago and it's safe to say that she is very happy and content to be in the comfort of her own bed/home. Thank you again for the prayers, thoughts, support and mostly the love that all of you have continued to show to my Mom and all members of our immediate family. God Bless and Love to you all!
Adam
Wednesday, October 16, 2013
Home :)
Just a quick post to let you all know mom got to come home a couple hours ago! We are so thankful they recognize how important it is to her to not stay at the hospital longer than necessary. We will update more tomorrow but wanted you all to be happy with us, knowing mom is sleeping soundly in her bed tonight.
Monday, October 14, 2013
Back at the hospital for a bit
Mom had to head back to the hospital over the weekend due to a high fever. The high fever means she has an infection of some sort and her body isn't healthy enough to fight it off itself. She wasn't happy to go back because she is much more comfortable at home but they will keep her there again until they get her temps under control. Today her temps have already been better.
We are still unsure as to the next step for Mom. It's been a challenging week for all of us close to her to face the unknown. We know they don't want to do more chemo because she's been through as much as her body can handle. We believe that if they get her healthy enough she will begin a new trial drug that works differently than anything she's used in the past. We are hoping her doctor stops in soon to clear up what's going on and provides some clarity for Mom.
In the meantime, please be praying with us. We are praying for God's healing hand to work in Mom and to see a mighty miracle. Thanks for your love and support.
We will update when we know more.
Wednesday, October 9, 2013
Wednesday
Mom is doing ok at home. She is very tired and rests most of the day but has had family and friends surrounding her and keeping her company. She loves being home, even if she can't live normally.
Mom had to go to the hospital today with Julie to get more blood. She goes all the way to Chicago for transfusions. Things are going well with that today. Julie has also learned a lot about helping Mom with her medicine. She hangs my mom's iv antibiotic every 12 hours and gives her the other oral and seringe medicine she needs throughout the day. It's not the easiest thing being home managing all of this, but it's way better than staying at the hospital!
Healthy visitors are welcome to see Mom. Maybe give one of us kids a heads up that you're going to be stopping by.
Thanks again for your continued prayers, notes, and all of your love.
Tuesday, October 8, 2013
Monday, October 7, 2013
Coming home tonight!
It has been a slow recovery for Mom this time around. She has been getting a little bit stronger each day and her counts are slowly starting to recover. She's been begging the doctors to let her go home. She's been there for over 6 WEEKS now and is so ready to leave that little room. The hospital is great and the staff is wonderful, but it's impossible to feel okay in any small room for that amount of time. She now has some neutrophils showing up in her blood so they said she can go home tonight!!
Dr. Jessica (Mom's main doctor) came in this afternoon and chatted with Mom and Julie for a little bit. She agrees it's time for Mom to go home. As great as this is to hear, Jessica said she's also concerned about how slowly Mom's counts are coming back. She said, "The bone marrow is not recovering as briskly as we'd like and I think that's because there are still leukemia cells in there." She said there are still options if that is the case. Dr. Jessica told us a couple months ago about a new clinical trial drug that she was very excited about. We don't know any details but at this point we know Mom gets to come home and that they are going to see how she does over the next week. No new bone marrow biopsy is schedule at this time but they'll probably do one within a couple weeks. Julie said things were positive and hopeful during their conversation with Dr. Jessica and Mom felt okay with it all. She just wants to get out of there! Taking things 1 day at a time!
For now, Mom comes home tonight (YAY), she rests and gets to be with family and friends, she will have home healthcare come to her house every other day to take care of her needs and draw her blood, and she has an appointment scheduled for next Wednesday with Dr. Jessica at Northwestern.
Please continue to pray with us for Mom's health to improve and for this cancer to be out of her system for good.
Dr. Jessica (Mom's main doctor) came in this afternoon and chatted with Mom and Julie for a little bit. She agrees it's time for Mom to go home. As great as this is to hear, Jessica said she's also concerned about how slowly Mom's counts are coming back. She said, "The bone marrow is not recovering as briskly as we'd like and I think that's because there are still leukemia cells in there." She said there are still options if that is the case. Dr. Jessica told us a couple months ago about a new clinical trial drug that she was very excited about. We don't know any details but at this point we know Mom gets to come home and that they are going to see how she does over the next week. No new bone marrow biopsy is schedule at this time but they'll probably do one within a couple weeks. Julie said things were positive and hopeful during their conversation with Dr. Jessica and Mom felt okay with it all. She just wants to get out of there! Taking things 1 day at a time!
For now, Mom comes home tonight (YAY), she rests and gets to be with family and friends, she will have home healthcare come to her house every other day to take care of her needs and draw her blood, and she has an appointment scheduled for next Wednesday with Dr. Jessica at Northwestern.
Please continue to pray with us for Mom's health to improve and for this cancer to be out of her system for good.
Thursday, October 3, 2013
A little boost :)
We saw a little movement in the numbers today! White count went from .1 to .2 - Yay! We will take it :)
We also saw her hemoglobin and platelets hang on for a couple of days without transfusions - hemoglobin even moved up on its own! Another good sign :)
Still no set day of when she can come home, but we got another step closer!
She is still fighting nausea and low-grade fevers..much more minor, but still a bother, so we are praying against this continuing for much longer!
She been walking more and more..she's getting stronger and stronger and fighting thru the nausea and fevers, and is anxiously awaiting the day they tell her she is ready to go home!
With love!
We also saw her hemoglobin and platelets hang on for a couple of days without transfusions - hemoglobin even moved up on its own! Another good sign :)
Still no set day of when she can come home, but we got another step closer!
She is still fighting nausea and low-grade fevers..much more minor, but still a bother, so we are praying against this continuing for much longer!
She been walking more and more..she's getting stronger and stronger and fighting thru the nausea and fevers, and is anxiously awaiting the day they tell her she is ready to go home!
With love!
Monday, September 30, 2013
Monday
Good morning all. Mom is doing fine this morning. We are at the point where everything is very stable and things are moving in a very positive direction, but we have to wait (and wait and wait) until her counts come up so that she can go home. The team of doctors that came in this morning were happy with how Mom feels. They are focusing on finding medicine that will help with her nausea. She's had a very difficult time eating since they have very strong antibiotics going in her iv since before her chemo started. They said they don't expect her counts to start coming up for another week since she has had this heavy chemo numerous times.
We still want to encourage people to come and visit. She's feeling fine these days and loves to sit and chat, so it would be a great week for friends to come spend some time with her to help pass the week by.
Prayer requests: Continue to feel stronger/better everyday, counts start coming up, clean bone marrow & in remission.
Thanks! Love you all.
We still want to encourage people to come and visit. She's feeling fine these days and loves to sit and chat, so it would be a great week for friends to come spend some time with her to help pass the week by.
Prayer requests: Continue to feel stronger/better everyday, counts start coming up, clean bone marrow & in remission.
Thanks! Love you all.
Thursday, September 26, 2013
"Mary Legend"
As many of you know our family eats and sleeps basketball...one of the greatest players of all time is Larry Bird - aka Larry Legend. There is another "Legend" who is still occupying room 1596 at Prentice and today I decided that we're just going to think of her as Mary Legend!! Just when you think she has done it all and she's fought through so much...she finds a way to keep going and wowing everyone including the doctors...thus why her new name is Mary Legend!
Amy and I drove up this morning to see Mom and hope that we would finally hear the results of her bone marrow biopsy. Sue was there from staying with her last night and Mom looked great when we came in. She's much more alert, talkative and generally stronger each time that I am there with her. About an hour after arriving Dr. Nye came in and was finally able to share the news with us.
You'll have to be patient because it's not a simple yes or no answer, as you know it's hard to understand all of the things that these doctors spend their entire career trying to figure out. She said that the samples reveal that her bone marrow has been wiped out, which is a positive thing because that means her body is still responding to the therapy (chemo). She also indicated that they did see a few leukemic cells present but that they are unsure if they are dying and just on the way out or if they are actually still active and reproducing other leukemic cells. This bone marrow biopsy was done much earlier (day 14) than other rounds that Mom has had treatment, and that is due to them wanting to try and figure out if they could give her some medicine to help boost her white blood cell production.
After you go through treatment your body ends up starting fresh/new within the bone marrow and hopefully producing good stuff again. Due to them seeing some leukemic cells they feel it is not a good option to give her the medicine to boost her white cell production and therefore her body will have to just build that on her own. After they see those numbers come back up they will then do another bone marrow biopsy to give them better results...maybe 1 - 2 weeks. Mom was very disappointed with this news and was visibly upset because she is ready to get out of the hospital more than anything. But, there were several very good signs that the doctors were excited about, mainly that her body is responding to treatment and her pneumonia is still very much under control at this time. Like I said above, she looks stronger and stronger each time we see her and the doctors are very encouraged by what her body is showing them. Sometimes after you've been through as much as she has your body just stops responding to treatment, and I think it was apparent that they had their doubts that the treatment would even work at all. Surprise, Mary Legend has different plans...she's going to find a way to walk out of there, even if there is a delay of a few days or weeks - I can see that determination in her eyes now.
Please pray that her white cells counts and marrow respond quickly and that her emotions can stay strong, and keep the cards and comments on the blog coming. Thank you again, I tried my best to explain but I know it's hard to figure out...it's still the case that they only person in control is God and we have no control and little understanding of the why's and how's...but that's ok. Pray for that peace to know that God is in full control. Love to you all, we'll update you again soon,
Adam
Amy and I drove up this morning to see Mom and hope that we would finally hear the results of her bone marrow biopsy. Sue was there from staying with her last night and Mom looked great when we came in. She's much more alert, talkative and generally stronger each time that I am there with her. About an hour after arriving Dr. Nye came in and was finally able to share the news with us.
You'll have to be patient because it's not a simple yes or no answer, as you know it's hard to understand all of the things that these doctors spend their entire career trying to figure out. She said that the samples reveal that her bone marrow has been wiped out, which is a positive thing because that means her body is still responding to the therapy (chemo). She also indicated that they did see a few leukemic cells present but that they are unsure if they are dying and just on the way out or if they are actually still active and reproducing other leukemic cells. This bone marrow biopsy was done much earlier (day 14) than other rounds that Mom has had treatment, and that is due to them wanting to try and figure out if they could give her some medicine to help boost her white blood cell production.
After you go through treatment your body ends up starting fresh/new within the bone marrow and hopefully producing good stuff again. Due to them seeing some leukemic cells they feel it is not a good option to give her the medicine to boost her white cell production and therefore her body will have to just build that on her own. After they see those numbers come back up they will then do another bone marrow biopsy to give them better results...maybe 1 - 2 weeks. Mom was very disappointed with this news and was visibly upset because she is ready to get out of the hospital more than anything. But, there were several very good signs that the doctors were excited about, mainly that her body is responding to treatment and her pneumonia is still very much under control at this time. Like I said above, she looks stronger and stronger each time we see her and the doctors are very encouraged by what her body is showing them. Sometimes after you've been through as much as she has your body just stops responding to treatment, and I think it was apparent that they had their doubts that the treatment would even work at all. Surprise, Mary Legend has different plans...she's going to find a way to walk out of there, even if there is a delay of a few days or weeks - I can see that determination in her eyes now.
Please pray that her white cells counts and marrow respond quickly and that her emotions can stay strong, and keep the cards and comments on the blog coming. Thank you again, I tried my best to explain but I know it's hard to figure out...it's still the case that they only person in control is God and we have no control and little understanding of the why's and how's...but that's ok. Pray for that peace to know that God is in full control. Love to you all, we'll update you again soon,
Adam
Wednesday, September 25, 2013
No news til Thursday
Sue text us from the hospital that the doctors are still waiting on more information. We should know something tomorrow.
It's been a long day waiting but it hasn't seemed to bother my mom. She's been sitting in the chair talking and seems to be feeling ok. Still upset stomach and not eating much but doing ok.
Thanks for all your love.
Tuesday, September 24, 2013
No news yet
Just wanted to let you all know that we don't know anything on the results of the bone marrow biopsy yet. We are anxiously waiting to hear and will update tomorrow. Praying for good news, clarity for what's to come, and peace for mom.
Monday, September 23, 2013
Bone Marrow Biopsy
Sorry for the wait, everyone!
Want to start with congratulating my parents on 38 years! They celebrated their anniversary last Friday :)
Results from the CT Scan (done Thurs): The lung "spots" looked better, as in they are shrinking. This is an encouraging sign! But in the left lung they said that because of some fluid build-up, she has a damaged lung. The repair of this will take some time and will be slow moving (as counts come up it will help repair this). The doctors say that what they have been doing to treat the pneumonia and lung issues seems to be working and they plan to stick with it. She is not feeling any pain or does not have any issues breathing, coughing & is not on oxygen, so that's good! Clinically this is good for them to see, but if there are any changes with these things, then they will take the next steps. Basically, they are keeping a close eye on the infected areas of the lungs and there is a cause for concern like there has been since we've been here - but we are happy with the positive progress & report that things look better and she has shown no signs of clinical effects (breathing, coughing, fevers are down)!
Because of the pneumonia - they decided to perform a bone marrow biopsy today. It was done at 11:30 am and it went really well! We should have results by tomorrow afternoon or Wed morn. Praying for clean marrow! If she is clear of leukemia, they can start giving her other medicine to help her white cell production and fight the pneumonia better! This is the obvious prayer for today! For the chemo to have worked and put her into remission - leukemia free!
Counts are the same since the last time we updated - no specifics on when she will be coming home yet, but hoping soon! It would just be so wonderful to get her out of this room ;) We anticipate that day!
Thanks for the prayers and we will try and update ASAP on the results of the bone marrow biopsy when we get it.....
Want to start with congratulating my parents on 38 years! They celebrated their anniversary last Friday :)
Results from the CT Scan (done Thurs): The lung "spots" looked better, as in they are shrinking. This is an encouraging sign! But in the left lung they said that because of some fluid build-up, she has a damaged lung. The repair of this will take some time and will be slow moving (as counts come up it will help repair this). The doctors say that what they have been doing to treat the pneumonia and lung issues seems to be working and they plan to stick with it. She is not feeling any pain or does not have any issues breathing, coughing & is not on oxygen, so that's good! Clinically this is good for them to see, but if there are any changes with these things, then they will take the next steps. Basically, they are keeping a close eye on the infected areas of the lungs and there is a cause for concern like there has been since we've been here - but we are happy with the positive progress & report that things look better and she has shown no signs of clinical effects (breathing, coughing, fevers are down)!
Because of the pneumonia - they decided to perform a bone marrow biopsy today. It was done at 11:30 am and it went really well! We should have results by tomorrow afternoon or Wed morn. Praying for clean marrow! If she is clear of leukemia, they can start giving her other medicine to help her white cell production and fight the pneumonia better! This is the obvious prayer for today! For the chemo to have worked and put her into remission - leukemia free!
Counts are the same since the last time we updated - no specifics on when she will be coming home yet, but hoping soon! It would just be so wonderful to get her out of this room ;) We anticipate that day!
Thanks for the prayers and we will try and update ASAP on the results of the bone marrow biopsy when we get it.....
Wednesday, September 18, 2013
Super-Mom
The day started out early for Mom today after a very good night of sleep...about 6:30am her nurse came in and said that she had some good news for us. I normally operate on "banker hours" so I was thinking that she better have some good news to be disturbing us at 6:30 in the morning when me and Ma are trying to get our beauty sleep!! But the news was good...Mom's white cell count was finally hitting their radar, it showed up at .1 - it's not much but it's a big deal knowing that for the last two weeks or so it has been at zero.
So what does that mean, you ask? Well, like the previous times that she has been able to go home, they are going to be looking for certain numbers in order to feel like she can walk out of Room 1596 and not look back! One of the key indicators is her white blood cell count because our bodies use those white cells to fight infection...and more specifically the body uses neutrophils in order to aid in that process. When those neutrophils are at a certain level it gives the doctors the comfort level to allow her to go home and function on her own, and in an environment that is not as controlled as her hospital floor. So seeing that at .1, although it's very small, shows that she is on her way!
The other things they will be looking for will be whether she needs blood and platelet transfusions. They are wanting her to get to the point where she only needs one or two of those per week in order to feel like they can let her go home...currently she is getting those almost every day. As her body starts to recover those transfusions should start to spread out more and even if she were to need those once or twice a week she could still be at home and come to the hospital when/if she needs them. The key word in all of that is still HOME...she just wants to go HOME!! I stayed with her last night and my siblings and I were talking about this during the coarse of this evening...she's just sick of that bed, sick of being bothered all the time, sick of not having an appetite and having to eat hospital food when she does feel like having something to eat...she sick of being sick! If any of you have stayed in the hospital for more than a night then you know what I'm talking about, but having to be as sick as she is and endure that is something that very few people have the willingness to do.
I will end with this; Today when the nurse came in with the good news Mom sat up and was very excited to hear what she had to say, especially since she was able to have such a good night of sleep. After the nurse left the room Mom said "There is only one reason why this is happening...it's because of everyone out there praying and because Jesus is answering those prayers." Mom can't explain it in detail because she's still not talking too much, but she GETS IT! She knows that we won't be able to explain, and the "Team" of doctors won't be able to explain or truly understand why she is now gaining strength again and showing every sign that she is going to beat both the Leukemia and the Pneumonia. Two weeks ago they gave her a 10% chance to do those things...so please keep praying that her miracle continues and that she continues to defy the odds. Last time we checked neither God, nor Mom anymore, gives one care about "odds"! After the team left today she looked at me and said "I honestly don't really care what they have to say, they are just looking at numbers"...exactly Momma, exactly! Thanks again for your prayers, and your visits...so many of you have come up to see her or sent her cards and we can't thank you enough. Love to you all - from Mom and our entire family!
So what does that mean, you ask? Well, like the previous times that she has been able to go home, they are going to be looking for certain numbers in order to feel like she can walk out of Room 1596 and not look back! One of the key indicators is her white blood cell count because our bodies use those white cells to fight infection...and more specifically the body uses neutrophils in order to aid in that process. When those neutrophils are at a certain level it gives the doctors the comfort level to allow her to go home and function on her own, and in an environment that is not as controlled as her hospital floor. So seeing that at .1, although it's very small, shows that she is on her way!
The other things they will be looking for will be whether she needs blood and platelet transfusions. They are wanting her to get to the point where she only needs one or two of those per week in order to feel like they can let her go home...currently she is getting those almost every day. As her body starts to recover those transfusions should start to spread out more and even if she were to need those once or twice a week she could still be at home and come to the hospital when/if she needs them. The key word in all of that is still HOME...she just wants to go HOME!! I stayed with her last night and my siblings and I were talking about this during the coarse of this evening...she's just sick of that bed, sick of being bothered all the time, sick of not having an appetite and having to eat hospital food when she does feel like having something to eat...she sick of being sick! If any of you have stayed in the hospital for more than a night then you know what I'm talking about, but having to be as sick as she is and endure that is something that very few people have the willingness to do.
I will end with this; Today when the nurse came in with the good news Mom sat up and was very excited to hear what she had to say, especially since she was able to have such a good night of sleep. After the nurse left the room Mom said "There is only one reason why this is happening...it's because of everyone out there praying and because Jesus is answering those prayers." Mom can't explain it in detail because she's still not talking too much, but she GETS IT! She knows that we won't be able to explain, and the "Team" of doctors won't be able to explain or truly understand why she is now gaining strength again and showing every sign that she is going to beat both the Leukemia and the Pneumonia. Two weeks ago they gave her a 10% chance to do those things...so please keep praying that her miracle continues and that she continues to defy the odds. Last time we checked neither God, nor Mom anymore, gives one care about "odds"! After the team left today she looked at me and said "I honestly don't really care what they have to say, they are just looking at numbers"...exactly Momma, exactly! Thanks again for your prayers, and your visits...so many of you have come up to see her or sent her cards and we can't thank you enough. Love to you all - from Mom and our entire family!
Monday, September 16, 2013
A good Monday...
Hi Everyone!
A week ago...we couldn't have imagined hearing the words that came today from mom's team of doctors...and we are happy to share with you a positive report - They are very pleased with how well mom is doing! She is neutropenic, however she has had no fevers for the past couple of days, her nausea is better, lungs are sounding good, and even though she's sleeping a lot, she is up and moving more and eating better. There is a CT Scan scheduled for Thurs to check the status of the pneumonia, and they expect to see no change (which is good!). So we are happy today! Mom is too!
Pray for a good week - she is at her lowest (counts) and may still spike fevers due to being neutropenic, but it's to be expected. Pray for the CT Scan to show no growth of the pneumonia. Pray for the chemo to do it's work on the leukemic cells and rid her body of them! And pray for rest!
Thanks again for your loving & supportive prayers and encouragement. We are blessed beyond belief by all of you and can't thank you enough.
A week ago...we couldn't have imagined hearing the words that came today from mom's team of doctors...and we are happy to share with you a positive report - They are very pleased with how well mom is doing! She is neutropenic, however she has had no fevers for the past couple of days, her nausea is better, lungs are sounding good, and even though she's sleeping a lot, she is up and moving more and eating better. There is a CT Scan scheduled for Thurs to check the status of the pneumonia, and they expect to see no change (which is good!). So we are happy today! Mom is too!
Pray for a good week - she is at her lowest (counts) and may still spike fevers due to being neutropenic, but it's to be expected. Pray for the CT Scan to show no growth of the pneumonia. Pray for the chemo to do it's work on the leukemic cells and rid her body of them! And pray for rest!
Thanks again for your loving & supportive prayers and encouragement. We are blessed beyond belief by all of you and can't thank you enough.
Saturday, September 14, 2013
Last Day of Chemo
It's Saturday and the last day of chemo. I'm visiting Mom with David and his friend, Erick. Julie is here and Dad just went to work out. Mom is having a pretty good day. She seems very sleepy and is moving at a slow pace, but she feels ok. She's sitting up in her chair right now talking with us. She has done very well this week and has been fever free for the past couple days. Fevers are the main way they measure how she's doing, both with the chemo and with her pneumonia.
She still has her most difficult days ahead. We are on day 5 (day 1 chemo starts) and usually days 7-10 are the most challenging for her health. The doctors have been pleased with how she's handling things. We are praying that the next week goes as well as it can for her.
She's had a good amount of friends and family visit her over the past few days and this has helped her pass the time. Thanks to all of you who have sent cards or visited. It means so much to Mom.
Love you all!
She still has her most difficult days ahead. We are on day 5 (day 1 chemo starts) and usually days 7-10 are the most challenging for her health. The doctors have been pleased with how she's handling things. We are praying that the next week goes as well as it can for her.
She's had a good amount of friends and family visit her over the past few days and this has helped her pass the time. Thanks to all of you who have sent cards or visited. It means so much to Mom.
Love you all!
Tuesday, September 10, 2013
Chemo is starting
Adam was with my mom at the hospital overnight and sent out this text this morning because they will be starting chemo today:
"Team of doctors were just in (they come in every morning to check on her and report anything new). Things are still very stable with her pneumonia. They said they will do whatever Mom needs through her therapy over the next few weeks. They said that this chemo will be challenging and not easy in any way. They don't see a point in treating her disease and making her go through this without getting rid of the leukemia. That means the chemo has to be intense."
He also text: "She's ready to fight and I like her attitude today. We had a good talk this morning and she is showing me she's ready. One other cool thing is that when we woke up this morning I asked her how she was doing and she said "doing good," and for the first time since arriving at the hospital she asked me "How are you doing?" I liked that!!"
Amy and Julie are with her today and she's had many amazing visitors over the past few days! We are so thankful for each one of you who have spent time with her in the hospital. Even though she's tired and doesn't interact like normal, she perks up and is re-energized with each visit. We still encourage anyone to visit. As long as you're not sick, anyone is welcome. It helps Mom pass the time and feel a little less cooped up.
We can't thank you enough for all of your love, support, and prayers. We will continue to trust in God's plan through each step.
"Team of doctors were just in (they come in every morning to check on her and report anything new). Things are still very stable with her pneumonia. They said they will do whatever Mom needs through her therapy over the next few weeks. They said that this chemo will be challenging and not easy in any way. They don't see a point in treating her disease and making her go through this without getting rid of the leukemia. That means the chemo has to be intense."
He also text: "She's ready to fight and I like her attitude today. We had a good talk this morning and she is showing me she's ready. One other cool thing is that when we woke up this morning I asked her how she was doing and she said "doing good," and for the first time since arriving at the hospital she asked me "How are you doing?" I liked that!!"
Amy and Julie are with her today and she's had many amazing visitors over the past few days! We are so thankful for each one of you who have spent time with her in the hospital. Even though she's tired and doesn't interact like normal, she perks up and is re-energized with each visit. We still encourage anyone to visit. As long as you're not sick, anyone is welcome. It helps Mom pass the time and feel a little less cooped up.
We can't thank you enough for all of your love, support, and prayers. We will continue to trust in God's plan through each step.
Saturday, September 7, 2013
Saturday.
Another quick update to let you all know that my mom has not started the chemo treatment yet. I guess you would say that it's a pretty "delicate" decision due to the pneumonia; and because she does still have a few good fighting cells in her, they want to get the pneumonia as "better" as they can get it before they start the chemo. Again...the chemo will take away all the bad leukemia......but it will also take all the good fighting stuff with it too, and this pneumonia can kick back into gear much faster and more aggressive if there is nothing there to fight it with. The tests have yet to determine the type of pneumonia it is - no "fungal" pieces of this puzzle have yet to come out in the lab but the meds they put my mom on seem to be working, so......we are waiting for the go ahead. It's important that you all understand the seriousness of this situation and again, we thank you for the prayers and love because she really feels them and it!
Prayers for strength & endurance.
Prayers for her mental state - gearing herself up for treatment.
Prayers for the combination of meds they will be using and for her body to withstand it all better than they would expect it to.
Prayers for her nausea (from all the meds she's on) and because it will get worse with the chemo.
Prayers for the doctors determining the next steps.
Prayers for us here as we urge her on.
Thank you. Thank you. Thank you!
Another quick update to let you all know that my mom has not started the chemo treatment yet. I guess you would say that it's a pretty "delicate" decision due to the pneumonia; and because she does still have a few good fighting cells in her, they want to get the pneumonia as "better" as they can get it before they start the chemo. Again...the chemo will take away all the bad leukemia......but it will also take all the good fighting stuff with it too, and this pneumonia can kick back into gear much faster and more aggressive if there is nothing there to fight it with. The tests have yet to determine the type of pneumonia it is - no "fungal" pieces of this puzzle have yet to come out in the lab but the meds they put my mom on seem to be working, so......we are waiting for the go ahead. It's important that you all understand the seriousness of this situation and again, we thank you for the prayers and love because she really feels them and it!
Prayers for strength & endurance.
Prayers for her mental state - gearing herself up for treatment.
Prayers for the combination of meds they will be using and for her body to withstand it all better than they would expect it to.
Prayers for her nausea (from all the meds she's on) and because it will get worse with the chemo.
Prayers for the doctors determining the next steps.
Prayers for us here as we urge her on.
Thank you. Thank you. Thank you!
Wednesday, September 4, 2013
Quick Update
Mom is feeling a little bit better each day this week. I'm up here with her today encouraging her to take walks and eat a few bites here and there. She's very tired still, but has shown much improvement since the weekend. The doctors say her lungs sound a little better today, and by seeing her activity level, they believe the antibiotics are treating the pneumonia properly. She will have a ct scan tomorrow evening, and if her pneumonia is not showing expansion, they hope to get the chemo started in the next couple of days.
Thank you for continuing to pray. She needs the Lord's strength so much right now. It has been quite a roller coaster of a week. Please check out Adam's post below if you haven't already.
Love you all! You are the best support system anyone can hope for!
Thank you for continuing to pray. She needs the Lord's strength so much right now. It has been quite a roller coaster of a week. Please check out Adam's post below if you haven't already.
Love you all! You are the best support system anyone can hope for!
Tuesday, September 3, 2013
Monday, September 2, 2013
Toughest Lady I've Ever Met!!
It's Monday night and my family apologizes for not updating the blog sooner...it's been a very busy and challenging couple of days but I'm going to try and get you caught up...
This is Adam, Mary's son, and I took over for Julie and David on Thursday night and got the chance to stay with her until my Dad came up on Friday. Friday was a very tough day, I'm not going to sugarcoat things...the Team of doctors came in that morning and had some pretty challening things to say to Mom (and partly to me as well). They explained to us that the pneumonia that Mom has is a very challenging form and they believed it was a "fungal" pneumonia. As you probably already realize, Mom's immune system is non-existent because of her leukemia and she's been having to get transfusions for blood and platelets since arriving at the hospital over a week ago. Viral pneumonia would have been challening enough for her to deal with due to her condition but to know that she's facing a steep uphill battle with this fungal pneumonia had us all very nervous. Thankfully you all were praying for her and although you might not have known specifically what to pray for, your prayers were still paying dividends!!
My biggest concern when we woke up on Friday morning was making sure that Mom was ready for the current battle that she was facing. The previous few days as well as Friday morning had her feeling very lethargic and the medicine that she was taking was making her very weak and sleepy most of the time. I knew I had my work cut out for me that day because they were telling her that she needed to have a bronchoscopy which is where they take a camera down her throat into her lungs in order to look at her lungs and get a sample to find out the specific type of fungal pneumonia she had. Talking her into that was NOT going to be easy because she already told Dad the day before that it "wasn't going to happen!" Well, after her and I got back from her CT scan she was getting some rest and God sent a little Angel into the room, her name is Dr. Jessica Altman, mom's leukemia doctor. She was a sight for sore eyes because any time she comes in to see Mom you can instantly see Mom's mood and attitude change for the better. It was no different on that Friday afternoon, Dr. Altman has a way about her and a calmness that gives Mom and our entire family confidence that she can move forward and dominate whatever hurdle is ahead of her.
Dr. Altman looked right at me and said "she can beat this pneumonia, I have no doubts about that". So then I said "Dr., I believe in her as well, she's about the toughest person I've ever met!" Apparently I was "way off" because Dr. came right back and said "Adam, let me correct you...she IS the toughest person that I have ever met!!" She went on to say that she has treated a lot of patients during her time as a leukemia doctor and she's never seen anyone who has been stronger and more determined than Mom. We've learned a lot more about what she means over the last few days...Mom's not supposed to be here right now, there is no data to support her making it through 3 other rounds and now going on to beat it for a 4th time. She's in uncharted territory because there is no data on her chances of survival to beat this leukemia again...and when the doctors told us on Sunday that they give her a 50/50 chance to beat the pneumonia I figured those odds are pretty incredible!! Much higher than any odds she's had before! In all seriousness, she is already our "miracle Mom", and we had/have no doubts that she can make it past all of this again. God has used her in so many ways over the past 4 years, and she's touched lives that we probably don't even know about. We haven't been able to figure out why God "chose" her to carry this disease, but the farther along we go the more we realize that He is the only one in control. He alone knows the reasons, but we have hope that He will continue to use her for his glory no matter what her outcome might be!
Later on Friday she ended up moving forward with the bronchoscopy after getting the encouragement that she needed from Dr. Altman. All of my siblings and spouses joined me at the hospital so that we could all be there with her without the kiddos. And while I'm thinking about it...thank you to all of you who have reached out and either offered support and actually taken a role in helping in some way, you are amazing and we can't do this without each of you! That visit seemed to jumpstart her mood and a shift started to occur...she had perked up some and was talking and interacting more...which was a great sign to all of us. Saturday then came around and we ended up bringing the kids up to see her, and it was like we were at 213 E. Lincoln St....kids running around everywhere, people eating food and candy, conversations that were way to loud for a hospital...and right in the middle of it all was Mom, loving every second of it! Uncle Joe and Aunt Cheryl came by with their daugher Sarah, and then later her sister Sue visited with her daughter Jenni and husband Mark (Sha right!), and I know she enjoyed that as well. All the while my Dad was there all weekend, helping her in any way that he could...I've been very proud of him each and every time she's been through this, but especially this time because this is definitely the toughest it has been for her...and he's barely left her side!
I'm almost done, hang in there!! Sunday was the reunion, and I know Mom was really looking forward to that day, but she obviously could not be at Sue's for the festivities. Thanks to technology we were able to Facetime her and everyone got a chance to say hello even if it was just for a second or two. It was a great time being together but it wasn't the same without my Mom and Dad there. We were able to update the family and prayed together, about 100 people strong!! It was decided that day that all of my Mom's siblings were going to try and get up there today to see her, and I'm told that many of them were able to go and spend some quality time with her. It must have paid off because while Bre and I were at dinner with our kids we received a picture from Julie that showed my Mom, her niece Kim, and her best friend Kathy taking a walk with her around her floor!!! It was an awesome sight to see because that can only mean one thing...she's getting stronger and continuing her fight...remember, she's the toughest lady that we've ever met!!! Needless to say the weekend ended very well to see Mom moving around, conversing with friends and family, and eating some food in order to get her strength back. We still don't know what type of specific pneumonia she has but just keep praying that it goes away because they cannot start any chemo to treat her leukemia until she has overcome this pneumonia.
That's all for now, thanks for being patient, and thanks for your love and support. Get up there to see her when you can, she would love to see you...and if you can't make it then write something on her blog or send her a text. We'll update again soon, God Bless and love to you all - DO WORK MOMMA!!
This is Adam, Mary's son, and I took over for Julie and David on Thursday night and got the chance to stay with her until my Dad came up on Friday. Friday was a very tough day, I'm not going to sugarcoat things...the Team of doctors came in that morning and had some pretty challening things to say to Mom (and partly to me as well). They explained to us that the pneumonia that Mom has is a very challenging form and they believed it was a "fungal" pneumonia. As you probably already realize, Mom's immune system is non-existent because of her leukemia and she's been having to get transfusions for blood and platelets since arriving at the hospital over a week ago. Viral pneumonia would have been challening enough for her to deal with due to her condition but to know that she's facing a steep uphill battle with this fungal pneumonia had us all very nervous. Thankfully you all were praying for her and although you might not have known specifically what to pray for, your prayers were still paying dividends!!
My biggest concern when we woke up on Friday morning was making sure that Mom was ready for the current battle that she was facing. The previous few days as well as Friday morning had her feeling very lethargic and the medicine that she was taking was making her very weak and sleepy most of the time. I knew I had my work cut out for me that day because they were telling her that she needed to have a bronchoscopy which is where they take a camera down her throat into her lungs in order to look at her lungs and get a sample to find out the specific type of fungal pneumonia she had. Talking her into that was NOT going to be easy because she already told Dad the day before that it "wasn't going to happen!" Well, after her and I got back from her CT scan she was getting some rest and God sent a little Angel into the room, her name is Dr. Jessica Altman, mom's leukemia doctor. She was a sight for sore eyes because any time she comes in to see Mom you can instantly see Mom's mood and attitude change for the better. It was no different on that Friday afternoon, Dr. Altman has a way about her and a calmness that gives Mom and our entire family confidence that she can move forward and dominate whatever hurdle is ahead of her.
Dr. Altman looked right at me and said "she can beat this pneumonia, I have no doubts about that". So then I said "Dr., I believe in her as well, she's about the toughest person I've ever met!" Apparently I was "way off" because Dr. came right back and said "Adam, let me correct you...she IS the toughest person that I have ever met!!" She went on to say that she has treated a lot of patients during her time as a leukemia doctor and she's never seen anyone who has been stronger and more determined than Mom. We've learned a lot more about what she means over the last few days...Mom's not supposed to be here right now, there is no data to support her making it through 3 other rounds and now going on to beat it for a 4th time. She's in uncharted territory because there is no data on her chances of survival to beat this leukemia again...and when the doctors told us on Sunday that they give her a 50/50 chance to beat the pneumonia I figured those odds are pretty incredible!! Much higher than any odds she's had before! In all seriousness, she is already our "miracle Mom", and we had/have no doubts that she can make it past all of this again. God has used her in so many ways over the past 4 years, and she's touched lives that we probably don't even know about. We haven't been able to figure out why God "chose" her to carry this disease, but the farther along we go the more we realize that He is the only one in control. He alone knows the reasons, but we have hope that He will continue to use her for his glory no matter what her outcome might be!
Later on Friday she ended up moving forward with the bronchoscopy after getting the encouragement that she needed from Dr. Altman. All of my siblings and spouses joined me at the hospital so that we could all be there with her without the kiddos. And while I'm thinking about it...thank you to all of you who have reached out and either offered support and actually taken a role in helping in some way, you are amazing and we can't do this without each of you! That visit seemed to jumpstart her mood and a shift started to occur...she had perked up some and was talking and interacting more...which was a great sign to all of us. Saturday then came around and we ended up bringing the kids up to see her, and it was like we were at 213 E. Lincoln St....kids running around everywhere, people eating food and candy, conversations that were way to loud for a hospital...and right in the middle of it all was Mom, loving every second of it! Uncle Joe and Aunt Cheryl came by with their daugher Sarah, and then later her sister Sue visited with her daughter Jenni and husband Mark (Sha right!), and I know she enjoyed that as well. All the while my Dad was there all weekend, helping her in any way that he could...I've been very proud of him each and every time she's been through this, but especially this time because this is definitely the toughest it has been for her...and he's barely left her side!
I'm almost done, hang in there!! Sunday was the reunion, and I know Mom was really looking forward to that day, but she obviously could not be at Sue's for the festivities. Thanks to technology we were able to Facetime her and everyone got a chance to say hello even if it was just for a second or two. It was a great time being together but it wasn't the same without my Mom and Dad there. We were able to update the family and prayed together, about 100 people strong!! It was decided that day that all of my Mom's siblings were going to try and get up there today to see her, and I'm told that many of them were able to go and spend some quality time with her. It must have paid off because while Bre and I were at dinner with our kids we received a picture from Julie that showed my Mom, her niece Kim, and her best friend Kathy taking a walk with her around her floor!!! It was an awesome sight to see because that can only mean one thing...she's getting stronger and continuing her fight...remember, she's the toughest lady that we've ever met!!! Needless to say the weekend ended very well to see Mom moving around, conversing with friends and family, and eating some food in order to get her strength back. We still don't know what type of specific pneumonia she has but just keep praying that it goes away because they cannot start any chemo to treat her leukemia until she has overcome this pneumonia.
That's all for now, thanks for being patient, and thanks for your love and support. Get up there to see her when you can, she would love to see you...and if you can't make it then write something on her blog or send her a text. We'll update again soon, God Bless and love to you all - DO WORK MOMMA!!
Thursday, August 29, 2013
Thursday
Hi everyone, it's Thursday and I've been hanging out with my mom for the last couple of days. Since I've been here, she's still been fighting the fevers. These fevers have just taken a lot of energy out of her, have brought on lots of naps and also some aches and pains in her joints and bones. She's kept on the "diet" of Tylenol and other meds to help, but we are really praying these fevers away! Again, it's just all too important these fevers stop so that she has all the strength and all the energy to be able to start the chemo treatment the doctors have decided on.
I just wish it were easier to explain all of what I want to explain to you all. It doesn't look like there is much to report, but it seems like everyday...every minute...someone is coming in to tell us something. It would be so hard to keep up with it all on here ;) Things change around here a lot...which reminds me and I hope I can someway relay the importance of reminding you too, that God IS in control. I am needing to hear this, so maybe you all do too :) WE HAVE to rest in that because it's always something they are looking into and something the team of doctors needs to talk about - and they come and tell us that they are thinking and talking, so it's easy to get ahead of ourselves and it's easy to start thinking and talking ourselves. But, we don't need to worry...or be anxious...or try and guess what's going on. The doctors have to, but WE, we need to Trust. We need to Pray..and we need to Believe.
Today was a full day..and my poor momma - endured a bone marrow biopsy, her PICC line put in and the teams of doctors (the infectious disease doctors, the lung doctors, the oncology doctors coming in and checking in) and they are all trying to hear her, understand her, help her and solve what's going on inside of her right now (and we very much appreciate it!) but it's not so fun while fighting a fever, full of pain meds from the biopsy and all she wants to do is sleep!! :)
Keep praying friends & family! We know we have our "Miracle-Mary" as it is and we are soooooo thankful and have loved every minute of the precious time we get with our Mom (& Grammy). We say she makes cancer look easy but it's still tough! And it's tough watching her. Pray for us while we are here - Satan tries to attack our thoughts & us anyway he can...and she needs us!
Saw this and wanted to share:
What Cancer Cannot Do:
Cancer is so limited.
It cannot cripple love.
It cannot shatter hope.
It cannot corrode faith.
It cannot eat away peace.
It cannot destroy confidence.
It cannot kill friendship.
It cannot shut out memories.
It cannot silence courage.
It cannot reduce eternal life.
It cannot quench the Spirit.
I just wish it were easier to explain all of what I want to explain to you all. It doesn't look like there is much to report, but it seems like everyday...every minute...someone is coming in to tell us something. It would be so hard to keep up with it all on here ;) Things change around here a lot...which reminds me and I hope I can someway relay the importance of reminding you too, that God IS in control. I am needing to hear this, so maybe you all do too :) WE HAVE to rest in that because it's always something they are looking into and something the team of doctors needs to talk about - and they come and tell us that they are thinking and talking, so it's easy to get ahead of ourselves and it's easy to start thinking and talking ourselves. But, we don't need to worry...or be anxious...or try and guess what's going on. The doctors have to, but WE, we need to Trust. We need to Pray..and we need to Believe.
Today was a full day..and my poor momma - endured a bone marrow biopsy, her PICC line put in and the teams of doctors (the infectious disease doctors, the lung doctors, the oncology doctors coming in and checking in) and they are all trying to hear her, understand her, help her and solve what's going on inside of her right now (and we very much appreciate it!) but it's not so fun while fighting a fever, full of pain meds from the biopsy and all she wants to do is sleep!! :)
Keep praying friends & family! We know we have our "Miracle-Mary" as it is and we are soooooo thankful and have loved every minute of the precious time we get with our Mom (& Grammy). We say she makes cancer look easy but it's still tough! And it's tough watching her. Pray for us while we are here - Satan tries to attack our thoughts & us anyway he can...and she needs us!
Saw this and wanted to share:
What Cancer Cannot Do:
Cancer is so limited.
It cannot cripple love.
It cannot shatter hope.
It cannot corrode faith.
It cannot eat away peace.
It cannot destroy confidence.
It cannot kill friendship.
It cannot shut out memories.
It cannot silence courage.
It cannot reduce eternal life.
It cannot quench the Spirit.
Sunday, August 25, 2013
Sunday
So it's been a more difficult last few days. Mom was not feeling well on Friday with an ear infection and chills. We took her temp that evening and it was pretty high so we decided it was time to take her to Northwestern. She checked in and got settled in her room with antibiotics and fluids. They determined she has the flu which also caused some pneumonia. Her temp today has been much better and she's feeling ok. My dad spent the last 2 nights with her and now her sister, Sue, is with her.
She was really trying to avoid going into the hospital but we knew it was necessary for her to be taken care of properly. We aren't sure when she'll be home but we're hoping her doctor stops in in the next day or 2. They haven't given her a treatment plan because they're still waiting on the same blood work results. We will update when we know more.
Please keep Mom in your prayers as she's felt like her body isn't as strong as she wants it to be. Obviously we have encountered issues like these in the past episodes of cancer but it still feels difficult to get through each twist and turn this journey brings.
We are choosing to trust and feel the "peace of God"...
"Do not be anxious about anything, but in every situation, by prayer and petition, with thanksgiving, present your requests to God. And the peace of God, which transcends all understanding, will guard your hearts and your minds in Christ Jesus." Philippians 4
Friday, August 23, 2013
Friday Update
Hi there. Just wanted to write a quick update as I'm sure some of you are wondering what's been going on this week. Mom is still home and is feeling some of the effects of the medicine they have her on. She's ok though and still doing things as she want to. She had her blood checked yesterday in Morris and the levels are still ok. When she has cancer and is on chemo her platelet and hemoglobin counts go down so that she needs transfusions at the hospital. Her counts are currently ok that she doesn't need a transfusion at this time.
In the coming days we expect to hear a plan of what the doctors would like Mom to do. They're still waiting on some information from her blood work. There are plenty of good options for Mom and we are praying that whatever they decide will get rid of this disease forever.
Thank you all for your loving support and your prayers. Mom is so thankful for each one of you in her life and for each of the comments you leave her.
In the coming days we expect to hear a plan of what the doctors would like Mom to do. They're still waiting on some information from her blood work. There are plenty of good options for Mom and we are praying that whatever they decide will get rid of this disease forever.
Thank you all for your loving support and your prayers. Mom is so thankful for each one of you in her life and for each of the comments you leave her.
Tuesday, August 20, 2013
Prayer Needed
Well, we really thought Mom had this thing beat. It's been a few months since our last update and we are sad to let all of you know that, once again, the cancer has returned. Mom received a call from her nurse on Friday afternoon saying that there is something not right with her counts. Her platelets are down and her white count has gone up. We have memories of these calls in the past, as this is Mom's 4th time hearing this news. There is no way to prepare for a call like this...one that stops all of your plans, twists your stomach in knots, and makes you want to scream.
Mom had an appointment at Northwestern Memorial Hospital this morning and met with Dr. Olga. Dr. Jessica is gone this week and works very closely with Dr. Olga. Mom's counts are still showing signs of cancer but aren't dropping too fast so they did not have to admit her today. We are thankful for that. There are a few treatment options they discussed, but we won't have a clear plan until they receive more results from the blood work they took today.
We are thankful for God in our hearts who gives us hope and an eternity with Him if we believe, that no matter what life throws at us, we find JOY in Him. He doesn't want this battle for our Mom any more than we do. He wants her to be well and happy and full of His Spirit. We are all going to go up against something in our lives, a battle that tears us down, but what matters most is having Christ to trust in. He gives us hope. He gives us peace. And He wants us to turn to Him in good times and bad, to love Him deeper each day.
Mom knows she can beat this again. She is strong in body and in spirit and has more support than anyone could ask for. She's already a miracle and we are SO thankful for each day we have with her but we will also be praying for a miracle to take this sickness away forever! Please pray with us.
Mom had an appointment at Northwestern Memorial Hospital this morning and met with Dr. Olga. Dr. Jessica is gone this week and works very closely with Dr. Olga. Mom's counts are still showing signs of cancer but aren't dropping too fast so they did not have to admit her today. We are thankful for that. There are a few treatment options they discussed, but we won't have a clear plan until they receive more results from the blood work they took today.
We are thankful for God in our hearts who gives us hope and an eternity with Him if we believe, that no matter what life throws at us, we find JOY in Him. He doesn't want this battle for our Mom any more than we do. He wants her to be well and happy and full of His Spirit. We are all going to go up against something in our lives, a battle that tears us down, but what matters most is having Christ to trust in. He gives us hope. He gives us peace. And He wants us to turn to Him in good times and bad, to love Him deeper each day.
Mom knows she can beat this again. She is strong in body and in spirit and has more support than anyone could ask for. She's already a miracle and we are SO thankful for each day we have with her but we will also be praying for a miracle to take this sickness away forever! Please pray with us.
Wednesday, April 3, 2013
All is Well
Hi there. We hope you all had a nice Easter weekend with your families. Mom is doing well. Her counts are good and she had a bone marrow done a couple weeks ago that came back great. Mom also spent 10 hours at Northwestern Hospital about a week and a half ago getting more stem cells infused. This was done to boost her fighting power if cancer cells do start to form at some point.
Over the last week Mom has battled a stomach bug, which she thought was just being spread around to lots of people we know, but is now on medicine for C-Diff...a bacteria that is contracted easily if you've spent time in a hospital. They think she probably picked this up in her 10 hour stay a week and a half ago. We're thankful she's on medicine now and today she is feeling MUCH better.
If you were wondering from the last post, Mom (and all of us) decided not to do any further chemo treatments at this time. We're very happy with how she's doing and how she responded to the clinical study chemo she had in December and January. We debated, prayed, researched, and talked more with Dr. Jessica about our options and feel such peace that it's best Mom just get the stem cell infusion. Now that the infusion is done, Mom will continue regular doctor visits and get back to enjoying life!
We are beyond blessed with how Mom has done through all her battles. We're thankful for each moment we have with her and with each person important in our lives. God has taught us so much through these trials and we hope you are all appreciating life like we now do. Much love to you all.
Over the last week Mom has battled a stomach bug, which she thought was just being spread around to lots of people we know, but is now on medicine for C-Diff...a bacteria that is contracted easily if you've spent time in a hospital. They think she probably picked this up in her 10 hour stay a week and a half ago. We're thankful she's on medicine now and today she is feeling MUCH better.
If you were wondering from the last post, Mom (and all of us) decided not to do any further chemo treatments at this time. We're very happy with how she's doing and how she responded to the clinical study chemo she had in December and January. We debated, prayed, researched, and talked more with Dr. Jessica about our options and feel such peace that it's best Mom just get the stem cell infusion. Now that the infusion is done, Mom will continue regular doctor visits and get back to enjoying life!
We are beyond blessed with how Mom has done through all her battles. We're thankful for each moment we have with her and with each person important in our lives. God has taught us so much through these trials and we hope you are all appreciating life like we now do. Much love to you all.
Thursday, February 14, 2013
Counts back up!
Since Mom's last dose of chemo her counts had been down for a few weeks. On Monday we saw them start spiking back up! It's always great to see that happen and we're thankful every time. This means that Mom can start doing more and going more places without having to watch out for every tiny germ she may encounter.
We went up to Chicago for an appointment with Doctor Jessica yesterday to check in. Mom's counts were up even more and she is officially no longer neutropenic. Mom's been feeling better and her health has steadily been improving over the past week. She was dealing with upset stomach, mouth sores, and other annoyances that weren't nearly as bad as she dealt with in December, but still made her feel sick and out of it. No one likes to feel that way.
Her doctor was very pleased with how well Mom is doing. We talked some about what would come next since they are trying so hard to keep the cancer gone this time. There are options for more chemo treatments in the near future or there are options for infusing more stem cells (like she received with her 1st transplant over 3 years ago from her brother, Joe). There is also the option to be happy with how she's doing now and let her body rest with no further treatment. We have begun to pray about all of this because it's obviously not the easiest decision to make. Mom struggled with thinking about having to go through more or not doing anything else...a decision no one should have to make. We're leaning on God right now to clarify what the next step should be and relying on him for peace.
Please pray with us...for Mom to wrap her mind around such an important decision and for guidance along the way. Thanks so much for checking in.
We went up to Chicago for an appointment with Doctor Jessica yesterday to check in. Mom's counts were up even more and she is officially no longer neutropenic. Mom's been feeling better and her health has steadily been improving over the past week. She was dealing with upset stomach, mouth sores, and other annoyances that weren't nearly as bad as she dealt with in December, but still made her feel sick and out of it. No one likes to feel that way.
Her doctor was very pleased with how well Mom is doing. We talked some about what would come next since they are trying so hard to keep the cancer gone this time. There are options for more chemo treatments in the near future or there are options for infusing more stem cells (like she received with her 1st transplant over 3 years ago from her brother, Joe). There is also the option to be happy with how she's doing now and let her body rest with no further treatment. We have begun to pray about all of this because it's obviously not the easiest decision to make. Mom struggled with thinking about having to go through more or not doing anything else...a decision no one should have to make. We're leaning on God right now to clarify what the next step should be and relying on him for peace.
Please pray with us...for Mom to wrap her mind around such an important decision and for guidance along the way. Thanks so much for checking in.
Friday, February 1, 2013
Doing Fine
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Hi there- hope you're all having a good weekend. Mom is doing okay with her treatment. The picture above was taken today when we went up to Chicago for Mom to get platelets and blood at Northwestern. This is Julie (Mary's 2nd daughter), my daughter Tenley, along with my Mom. Mom has been resting at home all week trying to get through the upset stomach feelings that come with the chemo. She doesn't feel quite as good as she looks in this picture, but she's fighting through it. She's had home healthcare come twice this week, along with her appointment today. We're in the thick of her "harder days," days 10-14, but the week ahead is very important. We pray she continues to do okay, the fevers stay gone, and her counts come back quickly!
Thanks for all your thoughts and prayers.
Sunday, January 27, 2013
Home
Mom was able to come home early this afternoon. We're always happy to have her settle back in at home and she couldn't wait to get here, as well. She finished the chemo late last night and is still feeling ok. After the first few days of chemo she always gets a stomach ache and doesn't feel right, but other than that she's doing fine. Over the next week or so her counts will continue to drop and she will be neutropenic. They anticipate her counts coming up much faster this time, so we hope she isn't neutropenic for long.
Mom is specifically asking for prayers that she doesn't get fevers from any infection or sickness. If she gets fevers she may have to go back to the hospital for a bit because they keep very close watch on her when that happens. Fortunately they don't anticipate problems since she went into this chemo in such good health.
We're thankful today that Mom is home, that she is cancer-free, and that we have Jesus in our hearts to guide us through every step of this journey. Oh, and we're also thankful for all of you who care so much and pray for Mom so often. We love you.
Mom is specifically asking for prayers that she doesn't get fevers from any infection or sickness. If she gets fevers she may have to go back to the hospital for a bit because they keep very close watch on her when that happens. Fortunately they don't anticipate problems since she went into this chemo in such good health.
We're thankful today that Mom is home, that she is cancer-free, and that we have Jesus in our hearts to guide us through every step of this journey. Oh, and we're also thankful for all of you who care so much and pray for Mom so often. We love you.
Monday, January 21, 2013
Consolation Therapy
Mom is up in Chicago today to start her consolation therapy. This is the same dose of chemo (still the clinical trial) she had in December, but she's getting it in hopes of preventing the cancer from ever coming back.
Today she got checked in, got her pic line put in (how they administer the chemo), and had a couple tests and checks done. It's been a pretty quiet, easy day. They are going to start the chemo around 7 tonight. She will have 5 days of 24 hour chemo and then be able to go home hopefully by Sunday.
We talked to a doctor here today about how the chemo will effect her in the next couple weeks. It seemed strange to us that she'll be able to go home on Sunday and stay home given how the chemo effected her last month. He explained to us that since her bone marrow is full of healthy cells it will take longer for her counts to go down and will take less time for her counts to recover. Last time she started chemo her counts were already very low and her bone marrow was very unhealthy. They also have her on antibiotics so that she has extra fighting power against germs.
Mom is in good spirits tonight. She was happy to see lots of familiar faces here on the 15th floor. There had to be 5 or more nurses and PTs that stopped in to say hi since they had established friendships with her last month.
Mom would love prayer for her to get through this chemo well, that she wouldn't have fevers, and of course that the cancer would stay away for good. We love you all and thank you for your continued support!
Today she got checked in, got her pic line put in (how they administer the chemo), and had a couple tests and checks done. It's been a pretty quiet, easy day. They are going to start the chemo around 7 tonight. She will have 5 days of 24 hour chemo and then be able to go home hopefully by Sunday.
We talked to a doctor here today about how the chemo will effect her in the next couple weeks. It seemed strange to us that she'll be able to go home on Sunday and stay home given how the chemo effected her last month. He explained to us that since her bone marrow is full of healthy cells it will take longer for her counts to go down and will take less time for her counts to recover. Last time she started chemo her counts were already very low and her bone marrow was very unhealthy. They also have her on antibiotics so that she has extra fighting power against germs.
Mom is in good spirits tonight. She was happy to see lots of familiar faces here on the 15th floor. There had to be 5 or more nurses and PTs that stopped in to say hi since they had established friendships with her last month.
Mom would love prayer for her to get through this chemo well, that she wouldn't have fevers, and of course that the cancer would stay away for good. We love you all and thank you for your continued support!
Wednesday, January 16, 2013
The Plan
Hi there, thanks for checking in. We have had quite a busy last couple weeks so I'm a little behind on updating the blog. Mom is doing great and all of her counts have recovered so well. Unfortunately my Grandma (Mary's mom), Grandma Emily, passed away last week. She lived an incredible life to age 93 and had 8 kids, 32 grandchildren, and 43 (?) great grandchildren! Mom and Sue took turns visiting her every day and Mom's brothers would visit her as often as they could. It was definitely a blessing that Mom could be home from the hospital when Grandma Emily got toward the end of her life. She spent a lot of quality time at the nursing home and supported her mom until the end. We know now that Grandma Emily is dancing in Heaven with her savior, Jesus!
This week Mom has to begin thinking about her own health again. She had a bone marrow biopsy last week and a follow up appointment today. Doctor Jessica was SO happy with how great Mom's biopsy looked! Yay! We knew Mom would receive more chemo treatments in the future, even with her still in remission. Jessica wants to give Mom another full dose of the clinical study chemo (that she had in December) to give Mom's blood more fighting power to prevent future leukemia from showing up. Jessica wants to do everything she can do to keep the cancer gone for good. We're thankful that she cares about Mom so much and that she's so knowledgeable to take the extra precautions necessary.
Mom will head back into the hospital on Monday and have 5 days of 24 hour chemo. Because she is healthy now and has no cancer showing, the chemo will not effect her nearly as bad as it did in December. Her blood counts will go down again and she will need to be cautious around people for the weeks until her counts recover again. She will be able to go home on day 6, next Saturday, and remain at home unless she needs infusions or any extra help that they are not anticipating. She will have home health care come to her house to take her blood and make sure all her vitals are good.
Mom is a little bummed she has to stay in the hospital all next week but trusts that Jessica knows what's best. She's never been through a full dose of chemo while she's healthy and been sent home, so there are some unknowns there. Mom has lots of support, prayers, and love coming her way constantly so we know she'll do great through this next step. If you could, please keep her in your prayers. We'll update you on how things are going along the way.
Love to you all!
This week Mom has to begin thinking about her own health again. She had a bone marrow biopsy last week and a follow up appointment today. Doctor Jessica was SO happy with how great Mom's biopsy looked! Yay! We knew Mom would receive more chemo treatments in the future, even with her still in remission. Jessica wants to give Mom another full dose of the clinical study chemo (that she had in December) to give Mom's blood more fighting power to prevent future leukemia from showing up. Jessica wants to do everything she can do to keep the cancer gone for good. We're thankful that she cares about Mom so much and that she's so knowledgeable to take the extra precautions necessary.
Mom will head back into the hospital on Monday and have 5 days of 24 hour chemo. Because she is healthy now and has no cancer showing, the chemo will not effect her nearly as bad as it did in December. Her blood counts will go down again and she will need to be cautious around people for the weeks until her counts recover again. She will be able to go home on day 6, next Saturday, and remain at home unless she needs infusions or any extra help that they are not anticipating. She will have home health care come to her house to take her blood and make sure all her vitals are good.
Mom is a little bummed she has to stay in the hospital all next week but trusts that Jessica knows what's best. She's never been through a full dose of chemo while she's healthy and been sent home, so there are some unknowns there. Mom has lots of support, prayers, and love coming her way constantly so we know she'll do great through this next step. If you could, please keep her in your prayers. We'll update you on how things are going along the way.
Love to you all!
Thursday, January 3, 2013
Doing Well
Mom has been home for over a week now and is doing great. She just had a doctor's appointment yesterday and her counts look wonderful! The numbers are coming up and Doctor Jessica is very pleased. Mom has been cautious trying to avoid all those nasty germs out there but is still doing more everyday. She was so glad to get to see her mom in the nursing home. Even though Grandma Emily isn't of sound mind, mom knows it still makes a difference to see her regularly. I know one of the hardest things for Mom going into the hospital was that she wouldn't get to be there for her mom.
Mom will have a bone marrow biopsy next Thursday and then they will put a plan in place for future treatment. Even though the cancer is gone they are still going to give her more of the new clinical trial chemo since they were so pleased with what it did. The treatment may require a few days in the hospital, but the doctor says Mom will be home through most of it. It will be a lower dose and much easier on Mom's body.
There is still a lot up in the air, but we sure are appreciating her being home! We thank God everyday for this miracle and we don't take it for granted.
Love to you all!
Mom will have a bone marrow biopsy next Thursday and then they will put a plan in place for future treatment. Even though the cancer is gone they are still going to give her more of the new clinical trial chemo since they were so pleased with what it did. The treatment may require a few days in the hospital, but the doctor says Mom will be home through most of it. It will be a lower dose and much easier on Mom's body.
There is still a lot up in the air, but we sure are appreciating her being home! We thank God everyday for this miracle and we don't take it for granted.
Love to you all!
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